http://www.peoplespharmacy.com/2007/10/02/can-gluten-be-t/ Person writing that GF diet helped Lupus symptoms
celiaccmecentral.com/pdf_redirect.php Celiac Disease booklet and information about false negative testing
Diet and lifestyle changes to help calm your Lupus symptoms or even begin healing your body from the inside out.
Showing posts with label celiac disease. Show all posts
Showing posts with label celiac disease. Show all posts
April 8, 2011
Another person that had Lupus went Gluten Free and felt better....
http://www.peoplespharmacy.com/2007/10/02/can-gluten-be-t/ Person writing that GF diet helped Lupus symptoms
celiaccmecentral.com/pdf_redirect.php Celiac Disease booklet and information about false negative testing
April 7, 2011
Book Review "The GF (Gluten Free) Kid..."
My daughter shares my food allergies/intolerances of gluten, dairy and eggs and lots more intolerances as well. My daughter and I were never tested for Celiac Disease before going gluten free. We have decided that we have such a strong reaction that we almost definitely are Celiacs and someday we will test for it to prove it (so far you need to go back to eating gluten to get a definitive doctor's test). Yes there are DNA tests but specialists argue that that proves you have the gene not the disease and supposedly you can have the gene without the manifestation of Celiac Disease, it seems there is a "catalyst" of some kind that spurs on the disease. I also heard of a new lab called Cyrex that has a new saliva test but I need to research that test and if you need to be eating gluten at the time of testing. http://www.cyrexlabs.com/
My point through all that is that it is hard to explain to her friends why she eats certain things and not others or why she can't have certain candies or a cupcake or ice cream at a party or share a friend's dinner and why she needs to bring her own food....
We found a great book at the library called "The GF(Gluten Free) Kid, A Celiac Disease Survival Guide" by Melissa London. It explains really well what it is like for a child that has Celiac Disease what is allowed and not allowed to eat. How the girl in the story was diagnosed, what she tells her friends and although she can't eat some things that there are still many delicious alternatives to favorite foods. In the back of the book there are many resources of books,websites, celiac organizations, where to get gluten free foods, etc.
I highly recommend this book. I found it at my local library.
http://www.amazon.com/GF-Kid-Celiac-Disease-Survival/dp/1890627690
April 5, 2011
April 27, 2010
From My Local Celiac Group / More Accurate Testing
A number of members at the last meeting with Dr. Milkes requested more information regarding a new blood test.
Here is a message from Dr. Milkes:
The deamidated gliadin antibody testing is the new blood test that is more accurate in screening for celiac disease compared to the conventional gliadin antibody testing.
David Milkes, MD
March 17, 2010
Happy St. Patty's Day! /Celiac Disease and the Irish!
http://www.denvernaturopathic.com/news/celiac.html
August 13, 2009
OK you have Lupus What's next? A repost
This is a repost of things that I feel helped me tremendously and things I'd like to pass on to all of you...
Here are some steps I recommend that you try if you are diagnosed with Lupus or any other autoimmune disease:
1)Keep a food/symptom diary. This will show if you have a repeated reaction to a food that you need to avoid to feel better. Also create a health "binder" the three hole type that you can put all your pertinent health information : copies of your blood tests, questions and research articles for your doctor/s, supplements, medications you are taking, allergy testing, etc (I also put in a copy of my blog in my health binder.)
2)Get tested for Celiac disease(often Lupus and Celiac go hand in hand,check the internet for articles)
3)Get a complete blood test from your health practitioner and also test if you are deficient in Vitamin D, Magnesium, Calcium, (B12 and all the rest of the micronutrient testing too)check mercury levels,(and other heavy metals tests too) and thyroid function .Check for osteoporosis, bone density.
4)Test for allergies(with kinesiology or blood testing) (allergies and autoimmune diseases go hand in hand too again check the internet- look up "leaky gut" too)
5)Avoid all foods you test allergic/intolerant to.
6)Detox your body(safely) don't try anything too wacky... I like eating tons of organic veggies and fruits and making fruit or veggie juices(always fresh fruit or veggies) or smoothies(with fresh or frozen fruits/veggies)
7)Flood your body with nutrients, eat super healthy foods,seasonal foods, raw food diets, macrobiotic diets, certified organic food, lots less salt(if you overdo), NEVER eat processedfoods, don't drink alcohol, don't smoke, have lots of Omega 3's, no soda, avoid too much caffeine/coffee, no trans fats, no artificial sweeteners, less real sugar or no real sugar. Chew each mouthful of food many times to aid in digestion, swirl juices smoothies in your mouth to be sure they are mixed with saliva before swallowing. Try to eat in a peaceful environment.
8)Exercise(don't laugh at me) I know you are in pain, try small steps, go get the mail, walk your kids to school, park further out from the grocery store, walk walk walk anywhere you can. Stretch! Yoga Or Tai Chi or Pilates. One thing to remember, DO NOT overdo on your good days, always strive to end early don't push yourself or you will hurt and not be able to do ANYTHING tomorrow.
9)Rest when you need to, say "no" if you are too tired!
10)Stress less... try not to sweat the small stuff, practice breathing exercises, many CD's are available at your local library, Andrew Weil has some excellent CD's on breathing/relaxation visualization and healing. Watch comedies, read joke books LAUGH!!!
11)Feng Shui-or lessen the clutter, clean your environment(don't laugh at me) I know you are too tired to clean! Try to do a little at a time or at least clean your bedroom and that can be your retreat...
12)Detox your house and your work space and your world as much as possible.What is in your soap,shampoo, your deodorant, your toothpaste,your make up, your shaving cream,etc.?Your skin absorbs everything into your body.Try to get a shower water filter, or a whole house water filter(chlorine is a nasty chemical). Don't use bleach in your laundry, get a environmentally safe laundry soap, dishwasher soap.Don't use aluminum pans/foil(at least don't let the aluminum foil touch your food, use less canned products many are coated inside with harmful chemicals, don't wear cheap jewelry many have lead in them and other harmful chemicals, don't wear nail polish. Home carpets/rugs and paints have many nasty chemicals in them try to find environmentally safe home decor items. Use wood, stone metal rather than plastic etc. Avoid phlalates in many toiletry items(soaps, shampoos,perfume,etc.)Get an air purifier and use it. Use natural home cleaners such as vinegar and baking soda. Read the labels, look up chemicals on the internet. Some are very scary! Wear organic cotton clothing, or look for bamboo fabrics. Use glass to store foods instead of plastic. NEVER heat food in plastic in the microwave, better yet don't use a microwave oven at all. Be careful of plastic water bottles left in the car on a hot day, plastics leach chemiclas into food and water when heated.
Read "Pain Free in 6 Weeks..." by Sherry Rogers MD and/or any other Sherry Rogers books.
***Always ask questions and keep reading and learning about your disease. Doctors don't know everything and there is so much information to learn. You may stumble on something that can help you and you can bring it to your doctor's attention. Good Luck!
Here are some steps I recommend that you try if you are diagnosed with Lupus or any other autoimmune disease:
1)Keep a food/symptom diary. This will show if you have a repeated reaction to a food that you need to avoid to feel better. Also create a health "binder" the three hole type that you can put all your pertinent health information : copies of your blood tests, questions and research articles for your doctor/s, supplements, medications you are taking, allergy testing, etc (I also put in a copy of my blog in my health binder.)
2)Get tested for Celiac disease(often Lupus and Celiac go hand in hand,check the internet for articles)
3)Get a complete blood test from your health practitioner and also test if you are deficient in Vitamin D, Magnesium, Calcium, (B12 and all the rest of the micronutrient testing too)check mercury levels,(and other heavy metals tests too) and thyroid function .Check for osteoporosis, bone density.
4)Test for allergies(with kinesiology or blood testing) (allergies and autoimmune diseases go hand in hand too again check the internet- look up "leaky gut" too)
5)Avoid all foods you test allergic/intolerant to.
6)Detox your body(safely) don't try anything too wacky... I like eating tons of organic veggies and fruits and making fruit or veggie juices(always fresh fruit or veggies) or smoothies(with fresh or frozen fruits/veggies)
7)Flood your body with nutrients, eat super healthy foods,seasonal foods, raw food diets, macrobiotic diets, certified organic food, lots less salt(if you overdo), NEVER eat processedfoods, don't drink alcohol, don't smoke, have lots of Omega 3's, no soda, avoid too much caffeine/coffee, no trans fats, no artificial sweeteners, less real sugar or no real sugar. Chew each mouthful of food many times to aid in digestion, swirl juices smoothies in your mouth to be sure they are mixed with saliva before swallowing. Try to eat in a peaceful environment.
8)Exercise(don't laugh at me) I know you are in pain, try small steps, go get the mail, walk your kids to school, park further out from the grocery store, walk walk walk anywhere you can. Stretch! Yoga Or Tai Chi or Pilates. One thing to remember, DO NOT overdo on your good days, always strive to end early don't push yourself or you will hurt and not be able to do ANYTHING tomorrow.
9)Rest when you need to, say "no" if you are too tired!
10)Stress less... try not to sweat the small stuff, practice breathing exercises, many CD's are available at your local library, Andrew Weil has some excellent CD's on breathing/relaxation visualization and healing. Watch comedies, read joke books LAUGH!!!
11)Feng Shui-or lessen the clutter, clean your environment(don't laugh at me) I know you are too tired to clean! Try to do a little at a time or at least clean your bedroom and that can be your retreat...
12)Detox your house and your work space and your world as much as possible.What is in your soap,shampoo, your deodorant, your toothpaste,your make up, your shaving cream,etc.?Your skin absorbs everything into your body.Try to get a shower water filter, or a whole house water filter(chlorine is a nasty chemical). Don't use bleach in your laundry, get a environmentally safe laundry soap, dishwasher soap.Don't use aluminum pans/foil(at least don't let the aluminum foil touch your food, use less canned products many are coated inside with harmful chemicals, don't wear cheap jewelry many have lead in them and other harmful chemicals, don't wear nail polish. Home carpets/rugs and paints have many nasty chemicals in them try to find environmentally safe home decor items. Use wood, stone metal rather than plastic etc. Avoid phlalates in many toiletry items(soaps, shampoos,perfume,etc.)Get an air purifier and use it. Use natural home cleaners such as vinegar and baking soda. Read the labels, look up chemicals on the internet. Some are very scary! Wear organic cotton clothing, or look for bamboo fabrics. Use glass to store foods instead of plastic. NEVER heat food in plastic in the microwave, better yet don't use a microwave oven at all. Be careful of plastic water bottles left in the car on a hot day, plastics leach chemiclas into food and water when heated.
Read "Pain Free in 6 Weeks..." by Sherry Rogers MD and/or any other Sherry Rogers books.
***Always ask questions and keep reading and learning about your disease. Doctors don't know everything and there is so much information to learn. You may stumble on something that can help you and you can bring it to your doctor's attention. Good Luck!
August 5, 2009
Gluten free first, then healthy and allergy free
I thought of something the last few days and wanted to document it. I had gone gluten free and other foods free at the beginning a little more than a year and a half ago, but over time my diet has gotten better and better.
At first I was eating GF breads/cakes/cookies, made with GF flours, you know the potato starch and the tapioca starch and the rice flours. Now I don't have those in my diet much at all. I had found Babycakes recipes that were GF and vegan (because not only was I GF I was egg free and dairy free.) I have found the recipes that were posted on the internet were even better than Erin's cookbook which I bought and tried some recipes and wasn't as happy with how the recipes in the cookbook came out..... :(
I was sad about a thing that Peter Green said at the Celiac talk that I went to...he said that a GF diet was not healthy...well it can DEFINITELY be healthy. Of course if you replace all the healthy whole wheat bread with potato starch and tapioca starch and white rice flour made bread that will NOT be as healthy.
On the other hand if you have whole grains like quinoa and amaranth and millet instead of bread or add those flours to your GF bread you may actually be HEALTHIER than a wheat eater!
Lately I eat naturally GF foods like flax crackers and nut butters and fruit and veggies and "raw" food dishes and desserts. I also eat beans and brown rice and brown rice tortillas and free range/no antibiotics/grain fed ground turkey, wild Alaskan salmon and wildcaught cod and flounder. (I do not eat chicken anymore because the NAET practioner said if I am highly allergic to eggs then I shouldn't eat chicken either because people that have an allergy to one usually have an allergy to the other)
My one "bad" thing if you want to call it that is that I still eat cocoa/chocolate(without milk of course-I only eat dairy free or dark chocolate) I don't have it that much though.
I think I have been feeling even better, the Dr. Cranton rare foods diet sealed it, I had felt much better after doing that. I have added some things back in after the elimination, but all in all am doing better.
The thing that I am trying to say here is my body may still need time to heal because I was still eating foods I was allergic to not so long ago. I will keep on pushing on and I have faith that I will find peace from all my symptoms. May you all find peace too!
At first I was eating GF breads/cakes/cookies, made with GF flours, you know the potato starch and the tapioca starch and the rice flours. Now I don't have those in my diet much at all. I had found Babycakes recipes that were GF and vegan (because not only was I GF I was egg free and dairy free.) I have found the recipes that were posted on the internet were even better than Erin's cookbook which I bought and tried some recipes and wasn't as happy with how the recipes in the cookbook came out..... :(
I was sad about a thing that Peter Green said at the Celiac talk that I went to...he said that a GF diet was not healthy...well it can DEFINITELY be healthy. Of course if you replace all the healthy whole wheat bread with potato starch and tapioca starch and white rice flour made bread that will NOT be as healthy.
On the other hand if you have whole grains like quinoa and amaranth and millet instead of bread or add those flours to your GF bread you may actually be HEALTHIER than a wheat eater!
Lately I eat naturally GF foods like flax crackers and nut butters and fruit and veggies and "raw" food dishes and desserts. I also eat beans and brown rice and brown rice tortillas and free range/no antibiotics/grain fed ground turkey, wild Alaskan salmon and wildcaught cod and flounder. (I do not eat chicken anymore because the NAET practioner said if I am highly allergic to eggs then I shouldn't eat chicken either because people that have an allergy to one usually have an allergy to the other)
My one "bad" thing if you want to call it that is that I still eat cocoa/chocolate(without milk of course-I only eat dairy free or dark chocolate) I don't have it that much though.
I think I have been feeling even better, the Dr. Cranton rare foods diet sealed it, I had felt much better after doing that. I have added some things back in after the elimination, but all in all am doing better.
The thing that I am trying to say here is my body may still need time to heal because I was still eating foods I was allergic to not so long ago. I will keep on pushing on and I have faith that I will find peace from all my symptoms. May you all find peace too!
March 13, 2009
OK you have Lupus, What's Next?
Here are some steps I recommend that you try if you are diagnosed with Lupus or any other autoimmune disease:
1)Keep a food/symptom diary. This will show if you have a repeated reaction to a food that you need to avoid to feel better.
2)Get tested for Celiac disease(often Lupus and Celiac go hand in hand,check the internet for articles)
3)Get a complete blood test from your health practitioner and also test if you are deficient in Vitamin D, Magnesium, Calcium, check mercury levels, thyroid function .Check for osteoporosis, bone density.
4)Test for allergies(with kinesiology or blood testing) (allergies and autoimmune diseases go hand in hand too again check the internet)
5)Avoid all foods you test allergic/intolerant to.
6)Detox your body(safely) don't try anything too wacky... I like eating tons of organic veggies and fruits and making fruit or veggie juices(always fresh fruit or veggies) or smoothies(with fresh or frozen fruits/veggies)
7)Flood your body with nutrients, eat super healthy foods,seasonal foods, raw food diets, macrobiotic diets, certified organic food, lots less salt(if you overdo), NEVER eat processed
foods, don't drink alcohol, don't smoke, have lots of Omega 3's, no soda, avoid too much caffeine/coffee, no trans fats, no artificial sweeteners, less real sugar or no real sugar. Chew each mouthful of food many times to aid in digestion, swirl juices smoothies in your mouth to be sure they are mixed with saliva before swallowing. Try to eat in a peaceful environment.
8)Exercise(don't laugh at me) I know you are in pain, try small steps, go get the mail, walk your kids to school, park further out from the grocery store, walk walk walk anywhere you can. Stretch! Yoga Or Tai Chi or Pilates. One thing to remember, DO NOT overdo on your good days, always strive to end early don't push yourself or you will hurt and not be able to do ANYTHING tomorrow.
9)Rest when you need to, say "no" if you are too tired!
10)Stress less... try not to sweat the small stuff, practice breathing exercises, many CD's are available at your local library, Andrew Weil has some excellent CD's on breathing/relaxation visualization and healing. Watch comedies, read joke books LAUGH!!!
11)Feng Shui-or lessen the clutter, clean your environment(don't laugh at me) I know you are too tired to clean! Try to do a little at a time or at least clean your bedroom and that can be your retreat...
12)Detox your house and your work space and your world as much as possible.
What is in your soap,shampoo, your deodorant, your toothpaste,your make up, your shaving cream,etc.?
Your skin absorbs everything into your body.
Try to get a shower water filter, or a whole house water filter(chlorine is a nasty chemical). Don't use bleach in your laundry, get a environmentally safe laundry soap, dishwasher soap.
Don't use aluminum pans/foil(at least don't let the aluminum foil touch your food, use less canned products many are coated with harmful chemicals, don't wear cheap jewelry many have lead in them and other harmful chemicals, don't wear nail polish
Home carpets/rugs and paints have many nasty chemicals in them try to find environmentally safe home decor items. Use wood, stone metal rather than plastic etc.
Avoid phlalates in many toiletry items(soaps, shampoos,perfume,etc.)
Get an air purifier and use it.
Use natural home cleaners such as vinegar and baking soda.
Real the labels, look up chemicals on the internet. Some are very scary!
Wear organic cotton clothing
Read "Pain Free in 6 Weeks..." by Sherry Rogers MD and/or any other Sherry Rogers books.
***Always ask questions and keep reading and learning about your disease. Doctors don't know everything and there is so much information to learn. You may stumble on something that can help you and you can bring it to your doctor's attention. Good Luck!
1)Keep a food/symptom diary. This will show if you have a repeated reaction to a food that you need to avoid to feel better.
2)Get tested for Celiac disease(often Lupus and Celiac go hand in hand,check the internet for articles)
3)Get a complete blood test from your health practitioner and also test if you are deficient in Vitamin D, Magnesium, Calcium, check mercury levels, thyroid function .Check for osteoporosis, bone density.
4)Test for allergies(with kinesiology or blood testing) (allergies and autoimmune diseases go hand in hand too again check the internet)
5)Avoid all foods you test allergic/intolerant to.
6)Detox your body(safely) don't try anything too wacky... I like eating tons of organic veggies and fruits and making fruit or veggie juices(always fresh fruit or veggies) or smoothies(with fresh or frozen fruits/veggies)
7)Flood your body with nutrients, eat super healthy foods,seasonal foods, raw food diets, macrobiotic diets, certified organic food, lots less salt(if you overdo), NEVER eat processed
foods, don't drink alcohol, don't smoke, have lots of Omega 3's, no soda, avoid too much caffeine/coffee, no trans fats, no artificial sweeteners, less real sugar or no real sugar. Chew each mouthful of food many times to aid in digestion, swirl juices smoothies in your mouth to be sure they are mixed with saliva before swallowing. Try to eat in a peaceful environment.
8)Exercise(don't laugh at me) I know you are in pain, try small steps, go get the mail, walk your kids to school, park further out from the grocery store, walk walk walk anywhere you can. Stretch! Yoga Or Tai Chi or Pilates. One thing to remember, DO NOT overdo on your good days, always strive to end early don't push yourself or you will hurt and not be able to do ANYTHING tomorrow.
9)Rest when you need to, say "no" if you are too tired!
10)Stress less... try not to sweat the small stuff, practice breathing exercises, many CD's are available at your local library, Andrew Weil has some excellent CD's on breathing/relaxation visualization and healing. Watch comedies, read joke books LAUGH!!!
11)Feng Shui-or lessen the clutter, clean your environment(don't laugh at me) I know you are too tired to clean! Try to do a little at a time or at least clean your bedroom and that can be your retreat...
12)Detox your house and your work space and your world as much as possible.
What is in your soap,shampoo, your deodorant, your toothpaste,your make up, your shaving cream,etc.?
Your skin absorbs everything into your body.
Try to get a shower water filter, or a whole house water filter(chlorine is a nasty chemical). Don't use bleach in your laundry, get a environmentally safe laundry soap, dishwasher soap.
Don't use aluminum pans/foil(at least don't let the aluminum foil touch your food, use less canned products many are coated with harmful chemicals, don't wear cheap jewelry many have lead in them and other harmful chemicals, don't wear nail polish
Home carpets/rugs and paints have many nasty chemicals in them try to find environmentally safe home decor items. Use wood, stone metal rather than plastic etc.
Avoid phlalates in many toiletry items(soaps, shampoos,perfume,etc.)
Get an air purifier and use it.
Use natural home cleaners such as vinegar and baking soda.
Real the labels, look up chemicals on the internet. Some are very scary!
Wear organic cotton clothing
Read "Pain Free in 6 Weeks..." by Sherry Rogers MD and/or any other Sherry Rogers books.
***Always ask questions and keep reading and learning about your disease. Doctors don't know everything and there is so much information to learn. You may stumble on something that can help you and you can bring it to your doctor's attention. Good Luck!
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