December 9, 2013

"Healing Rheumatoid Arthritis?"

Another holistic doctor for you all to research. Dr. McDougall. Read his books/articles/website etc. Click below to see how a patient of his healed her arthritis. He also mentions this diet/protocol being able to help Lupus as well.

November 12, 2013

Stop by and "Like" my Lupus Hope Facebook page!

Click the link below to visit Lupus Hope on Facebook. Please "like" Lupus Hope to receive tips and hints on easing Lupus symptoms and living a healthy lifestyle.

Go Gluten Free and Fix Your Brain by Kelly Brogan MD

Folks with Lupus often have brain fog and memory problems. I remember sometimes my brain felt just to tired to think. I would want to run away from problems. My brain felt so much better when I added supplements and took out the foods I was allergic/intolerant to. The main ones being wheat/gluten, dairy, and eggs.

I've Been Slacking...

Realized I've been slacking off on routinely writing for Lupus Hope. I have been posting some on Facebook. I have to double check if I have a link on my blog to my Lupus Hope Facebook page. Since my move to Eastern Long Island way too much has been going on.

Started my children in their Senior year, last year, out here and they didn't do well at all. So we rented an apartment to get them back into their old school district. The added expense of the apartment and gas for travel, hurt, plus paying for our current mortgage as well.

Then this year they both started college and more money was needed.

Also 2 sick and old doggies (the dogs are 10 and 11 years old) in the mix and vet trips. One dog has developed incontinence, the other has a mass that we think is cancer....(even with feeding the dogs quality homemade raw food diets... go figure)

OK enough about me. I had 2 reasons for starting this blog.
1) To document my Lupus healing journey
2) To share information to help others with Lupus and other autoimmune diseases (and other diseases of other types) because something I try, or research, or learn can possibly help you all and your friends and family

September 9, 2013

My Lupus Hope Healing Plan

Below is a link to my "sister" blog, Lupus Hope Healing Plan, on actual steps to take to get healthier. Read the blog research the items and if you think they would help you too, take those baby steps to make a healthier life/world for yourself (and your family/friends).

August 14, 2013

Gluten sensitivity masquerading as systemic lupus erythematosus by Dr M Hadjivassiliou


A paper that everyone should read. If you look at Celiac Disease/Gluten Intolerance symptoms and Lupus symptoms side by side, many symptoms are far too similar. Click below to read the paper

July 30, 2013

Another Testimony to Changing Diet to Heal Lupus

Click below to read this woman's story....

Long Island Health Food Stores

Here is a list of Long Island Health Food Stores from LI Holistic Health (also I would like to add Rita's Real Foods in Bayport, Live Island Cafe in Huntington, Organically Yours in Northport,
 It's Only Natural Food and Wellness Store in Bellport, Halsey's Green Thumb Farmer Market in Water Mill has many grocery items as well as, gluten free items, raw nuts, dried fruits, beans, rice, pasta, chips, cheeses and check out any other farmer's markets too) It's great to keep a list of Health Food Stores where you live or where you travel so you always have food options whether you are raw, macrobiotic, gluten free, dairy free, egg free, nut free, paleo, or whatever diet you personally follow.

When you travel look on-line for health food stores in the location you will be travelling. Also don't forget if you are travelling during the warmer months you can look to your local farmer's markets as well!

July 12, 2013

Molds on "travelling" foods

At the end of the "shipping" season and the start of the Long Island growing season, I started to think about all the mold growing on shipped produce. It is a LONG way from California to New York. That is where most organic fruit/veggies are from that come to NY after our growing season is over.

I'm not sure where the grains/dry beans and nuts are from as many times they are not labeled. These products are often moldy too.

If you have issues with mold this could be a real problem for your body. When we outwardly see mold growing it has already been growing on the food for some time.

Another reason to eat locally grown produce...or start growing your own garden/food.

Some foods that are affected are; all fruits and veggies, nuts, beans, grains, flours just about everything!

Also watch for tropical fruits, they also come a long way to most location, mangoes; pineapples, coconut, etc.(and these are often irradiated to get rid of any critters trying to hitch a ride to the US)

July 4, 2013

Free Streaming Longevity Conference- Nadine Artemis on Sun and Healing (and LOTS more)

Check out the talk by Nadine Artemis first if you can. It is on sunlight and healing. Please be cautionary and check with your doctor, preferably a holistic doctor, before engaging in sun "therapy" You need to make sure your body has the nutrients and minerals needed to tolerate the sun. Also sun exposure can cause issues in Lupus patients. Please watch and make your own decision with your doctor. This is only free until Saturday night. Enjoy...

May 21, 2013

Not All Super Foods are for Everyone by By Christine H. Farlow, D.C.

A really great article...also something I have not mentioned enough. You CAN be sensitive/intolerant  to a super food too! Just because it's a super food, it isn't good for your body if you have issues digesting it and your immune system kicks in and creates inflammation. Click below to read the article. Everyone is different!

Things You Should Give Up to be Happy - A MUST read!

Finding the right nutrition isn't all there is to being healthy. You need to be happy and at ease emotionally as well. Click on the link below for things to give up to be at peace in your life.

May 14, 2013

Best and Worst Things about being Gluten Free from Celiac Chicks

 I loved this article. To read it click the link below.

 I agree, most times I feel so much better by avoiding gluten (and dairy and eggs, in my case) and avoiding these foods is well worth it, but it is hard at times and can be frustrating when you can't eat what you'd really like to. Think... being at an Italian or other favorite bakery and not being able to pick anything to sad. On the other hand I can almost re-create any food at this point to satisfy a craving, it's not a perfect pizza is delicious, but it is NOT NY delicious thick crust cheesy pizza. Also it is VERY frustrating to not be able to get foods on the run, when hungry, and that I have to cook/prepare so much of the foods that my family and I eat. It's lots of work.
My daughter and I were just making a list of places we can eat with no issues. They include
Cornucopia health food store Sayville, Babycakes Bakery in NYC, Live Island Cafe (raw food) in Huntington. We need to avoid gluten dairy and eggs so it is a little harder for us.

April 26, 2013

The Immune Program recommended by Mark Hyman MD

Please check out The Immune Program recommended by Mark Hyman MD for all sufferers of autoimmune diseases...can you say Lupus?....

April 24, 2013

Coumadin and Leafy Greens/Green Smoothies Do not Mix Well

If you are on Coumadin or any other pharmaceutical blood thinner (Warfarin or other) DO NOT suddenly try green smoothies. ALSO NEVER stop taking blood thinners without a doctor's knowledge and agreement that it is relatively safe and only under medical supervision.

If you are on blood thinners the Vitamin K in the green leafy veggies will counteract/work against the coumadin. The best world is to have the same approximate amount of leafy greens a day.

There are also foods not to eat/over indulge in because of bleeding risk as well.

This is one reason I am glad I have not had to take blood thinners.

Green leafy veggies are the health food power houses for your body, for healthy blood vessels and bones.

Coumadin/Warfarin Diets

Foods high in salicylates/blood thinning capability

April 16, 2013

Foods to Eat for Sun Protection from the Inside Out

I have heard that the foods you eat can help your body thwart more of the UV rays it may be exposed to, (remember flourescent bulbs indoors produce UV rays too!) . Here are 2 great articles on the subject. Eat your watermelon and tomatoes (if  tolerated) and any other high lycopene foods for natural sun protection from the inside, out!

***MAKE SURE that you cover up with UV rated clothes/hats or use sun screen if you have Lupus, don't rely ONLY on foods you eat for sun protection***

Sunscreen or Not?- It's that time of the year again! -A repost

This festival is coming up again this weekend 2013...this is a repost of sunscreen info. Please read.

Went to a festival at an organic farm this past weekend and the sun "surprised" me I asked my husband to get my umbrella from the car even though I had a hat, my arms were bare...

Today it is 58 degrees in NY...chilly and cloudy....
This is the time we should all be careful about the sun, springtime. Most people with Lupus have sun sensitivity. I, myself, can feel achey and feverish and extremely tired after sun exposure. I can even end up getting Discoid Lupus sores.(haven't had them in a long time now)

Even though the weather is not quite hot the spring sun is still VERY strong! Don't be fooled. Now when I say I protect myself, I would rather use clothing, hats, umbrellas and good old tree shade. Most times I go out in the early morning or the early evening. The sun is the hottest/strongest between 10:00am -3:00 pm so stay in at those times or protect yourself very well!

There are so many toxic chemicals in sunscreens be VERY cautious of what you put on your skin!
Please read my past posts, linked below, there are also some great articles from others as well.

April 12, 2013

More people that were helped by a diet change and their blogs/contacts...and a list of doctors that believe in nutrition and holistic healing


Some people I know/have met, for folks to get in touch with to help you on your healing journey. Will add a couple more, so check back!

People Who Feel Better With a Diet and Lifestyle Change (have or have had Lupus)  (she let her blog expire but her name is Lisa LaMendola- Google her)   Margaret Romero NP-C (Me - Toni Kaste NC)  ( Stacey Becker- she has great articles)  Elisa Rodriguez RD, LDN Carla Ulbrich

Met another woman named Karen in Montana (she doesn't have a blog or other information out to contact her- sorry)
Just found this story- above-- I haven't met Gina Yashere....but interesting article...

Doctors Who Can Help (These are holistic doctors that believe in food allergies,intolerances, diet change, getting rid of heavy metals, de-toxing and lifestyle changes such as stress reduction) Mark Hyman MD Joel Fuhrman MD Fred Pescatore MD Steve Nenninger ND

April 11, 2013

Books to Read on Healing Lupus - All Holistic

                                           Photo and creature by Carly Kaste

Please read, read, read ! Knowledge is power. These books are some of the tools that I found my healing information that I post on my blog. There is NEVER one way to heal!

March 21, 2013

Severe Energy Drop At Times?

One of the things that lead me to find out about my food allergy/ intolerance problem, even before I was tested, is the way I felt at certain times of the day, my energy would plummet until I felt like I would even pass out. or feel like I could just drop.

The most embedded experience in my mind of this happening to me, was going to Dunkin Donuts for breakfast years and years ago and having 2 donuts early in the morning. Right after I felt like I was getting the flu...extremely tired and feeling like all my energy to do anything had left me, I just felt like going back to bed and I barely woke up!

I blamed it on the sugar in the donuts...but now I know that although it could have been the sugar as well, I have major allergies/intolerances to eggs, wheat/gluten and milk, and that donut was a "triple threat".

I used to tell people the feeling was like a blanket going over my head but I could still see, or like my brain just left my body and it was hard to think , or it just felt like I could fall down, or like I was getting the flu. Do you, or someone you know, feel really bad at certain times of the day? Keep track of what you eat. Maybe you feel this way after donuts or after a bowl of pasta, or after eating a sandwich....please get an allergy test and don't continue eating foods that make you feel bad/worse.
Food should give you energy not make you feel like taking a nap.

Try this experiment, one day have a large salad with a few ounces of nuts or seeds or cooked beans or salmon or chicken  and a dressing of olive oil and vinegar or a raw foods nut dressing,(no croutons or heavy milk based or processed dressings) how do you feel after the meal? Then, the next day, have a bowl of pasta how do you feel after that meal? Choose what makes you feel good, especially if you have Lupus or any other health issues. Eat to live and feel great!

March 14, 2013

Dr. Joel Fuhrman's Super Immunity Diet on Doctor Oz

No I am NOT stuck in a's just that Doctor Oz has been having incredible guests and topics on his show the past few weeks. Extremely great information for anyone in pain or how to eat so you stay healthy and never get the pain to start with! Enjoy the episode below. Videos are attached to the doctor Oz link below.

March 12, 2013

Lupus Hope Healing Plan Blog

Don't forget to take an occasional peek at
it has great advice all in one spot that you can study. You can then choose to take one step at a time to implement these strategies in your own life.

February 26, 2013

24 Hour Stress Cleanse on Dr. Oz

 We all know when we have any illness it leads to more stress in our lives. Here are some ideas from experts on ways to do a  24 hour "stress cleanse". I found the show very helpful.
Click the link below for more...

February 25, 2013

February 6, 2013

Reminders on Healthy Eating...

Good for me to remind myself every so often as well....I don't always eat healthy...sorry to say.

I have issues with gluten.dairy and eggs so I avoid those in my diet (am trying to cut back on soy also since I had a larger reaction on my last food allergy test.)

Lots of fresh veggies

Less to no grains

Some low sugar fruits

Whole, real foods

Meat or fish to get Omega 3's and/or iron (or make sure you include nuts/kale/beans and other omega 3 iron rich plant foods- at this point in my research  I feel meat and fish in small quantities is good for maintaining health)

Less to no refined sugar.

Less salt (if you overdo)

Less or preferably no processed meats/foods

Less to no canned foods

Water or tea (coffee can give issues to some)

Some things that still trip me up. I love to bake/make sweet treats. I love my dark chocolate. I also enjoy uncured nitrate free hot dogs (very rarely). I get lazy at times when faced with chopping veggies/making healthy foods (cooking and preparation lacks at times)

January 25, 2013

Read the Story of a Woman Who was Healed of Lupus Nephritis

Believe it or's up to you! But I know changing your diet helps truckloads as well as getting back to nature and a more natural way of life.

January 24, 2013

Ridding Paint Smells Naturally....

Have you moved to a place and it's newer or remodeled? You have those outgassing smells. The new carpet...the new paint smells. Recently we needed to rent an apartment. It was in a great neighborhood and we "overlooked" the remodel but hated the smell and the thought of chemicals in the air.

When you are stuck in a position such as this, here are some natural ideas for "healthing it up"

1) Open the windows as much as possible ( a few minutes to a half an hour is better than nothing even in the cold/hot weather) Use fans for a cross breeze right through the home. Fan in one window pulling in the air, fan the other window sucking the air out.

2) If you can afford it buy an air purifier run it a lot and make sure you change/clean the filter often. If you don't have one of these your body/organs become the "filter".

3) Real beeswax candles. Light them, then and make sure they are always attended when lit.

4) Plates/bowls of onions/lemons/vanilla/coffee/baking soda/ water all absorb the smells and leave their scents in their place.

5) Use natural cleaning products. Baking soda, vinegar, essential oils. There are many recipes on the internet for any type of cleaner.

6) Sprinkle rugs with baking soda and let sit 1 hour and vacuum.

7) Make something delicious in your dehydrator  (if you have one- or use your oven).
    Cooking anything delicious will make the home smell better.
    Use real ingredients for cooking and cleaning.

8) Essential oils... I love lavender oil, mix a few drops with water in a spray bottle and spray away.

9) Himalayan Salt lamp.

10) Have as many plants as possible, research the best air purifying plants. Spider plants and philodendron, are two great air purifiers.

If you have any other tips to add, feel free to comment below or email me at