September 25, 2009

OK you have Lupus What's next? A repost

This is a repost of things that I feel helped me tremendously and things I'd like to pass on to all of you...Here are some steps I recommend that you try if you are diagnosed with Lupus or any other autoimmune disease:

1)Keep a food/symptom diary. This will show if you have a repeated reaction to a food that you need to avoid to feel better.

2)Also create a health "binder" the three hole type that you can put all your pertinent health information : copies of your blood tests, questions and research articles for your doctor/s, supplements, medications you are taking, allergy testing, etc (I also put in a copy of my blog in my health binder.)

3)Get tested for Celiac disease, do this BEFORE you go Gluten Free if you can. The test will not be accurate unlesss you are presently eating gluten. (often Lupus and Celiac go hand in hand,check the internet for articles)

4)Get a complete blood test from your health practitioner and also test if you are deficient in Vitamin D, Magnesium, Calcium, ( B12 and all the rest of the micronutrient testing too)deficiency in stomach acid. Check mercury levels,(and other heavy metals tests too),hormone levels, and thyroid function, adrenal function, parasites, candida, viruses in the blood, check CRP and homocysteine levels .Check for osteoporosis, bone density. Try a Metametrix Cardio ION blood test if you can afford it. This test includes many of the above tests in one all inclusive test.

5)Test for allergies(with nutritional kinesiology or IgG or IgE blood testing) (allergies and autoimmune diseases go hand in hand too again check the internet- look up "leaky gut" too) . Or try an elimination diet Dr. Cranton has a GREAT one!

6)Avoid all foods you test allergic/intolerant to.

7)Detox your body(safely) don't try anything too wacky... I like eating tons of organic veggies and fruits and making fruit or veggie juices(always fresh fruit or veggies) or smoothies(with fresh or frozen fruits/veggies). Research enemas/colonics. Sweat with a sauna(far infrared is the best) and sweat with exercise too.

8)Flood your body with nutrients, eat super healthy foods,seasonal foods, raw food diets, macrobiotic diets, drink fresh homemade juices, green smoothies, certified organic food, lots less salt(if you overdo), NEVER eat processed foods, don't drink alcohol, don't smoke, have lots of Omega 3's, no soda, avoid too much caffeine/coffee, no trans fats, no artificial sweeteners, less real sugar or no real sugar. Chew each mouthful of food many times to aid in digestion, swirl juices smoothies in your mouth to be sure they are mixed with saliva before swallowing. Try to eat in a peaceful environment.

9)Exercise(don't laugh at me) I know you are in pain, try small steps, go get the mail, walk your kids to school, park further out from the grocery store, walk walk walk anywhere you can. Stretch! Yoga Or Tai Chi or Pilates. One thing to remember, DO NOT overdo on your good days, always strive to end early don't push yourself or you will hurt and not be able to do ANYTHING tomorrow.

10)Rest when you need to, say "no" if you are too tired!

11)Stress less... try not to sweat the small stuff, practice breathing exercises, many CD's are available at your local library, Andrew Weil has some excellent CD's on breathing/relaxation visualization and healing. Watch comedies, read joke books LAUGH!!!

12)Feng Shui-or lessen the clutter, clean your environment(don't laugh at me) I know you are too tired to clean! Try to do a little at a time or at least clean your bedroom and that can be your retreat...

13)Do macrobiotic "body scrubbing" (see the internet for articles) You skin is your largest detox organ, doing this helps to detox your body.

14) Try reflexology, reiki, massage, NAET, accupuncture, Active Release Therapy, Therapist to heal old childhood hurts.

15)See a holistic dentist, get you mercury amalgams taken out if you feel that it's necessary.

16)Detox your house and your work space and your world as much as possible.What is in your soap,shampoo, your deodorant, your toothpaste,your make up, your shaving cream,etc.?Your skin absorbs everything into your body. Try to get a shower water filter, or a whole house water filter(chlorine is a nasty chemical). Don't use bleach in your laundry, get a environmentally safe laundry soap, dishwasher soap. Don't use aluminum pans/foil(at least don't let the aluminum foil touch your food, use less canned products many are coated inside with harmful chemicals, don't wear cheap jewelry many have lead in them and other harmful chemicals, don't wear nail polish. Home carpets/rugs and paints have many nasty chemicals in them try to find environmentally safe home decor items. Use wood, stone metal rather than plastic etc. Avoid phlalates in many toiletry items(soaps, shampoos,perfume,etc.)Get an air purifier and use it. Use natural home cleaners such as vinegar and baking soda. Read the labels, look up chemicals on the internet. Some are very scary! Wear organic cotton clothing, or look for bamboo fabrics. Use glass to store foods instead of plastic. NEVER heat food in plastic in the microwave, better yet don't use a microwave oven at all. Be careful of plastic water bottles left in the car on a hot day, plastics leach chemicals into food and water when heated.

Read "Pain Free in 6 Weeks..." by Sherry Rogers MD and/or any other Sherry Rogers books

.***Always ask questions and keep reading and learning about your disease. Doctors don't know everything and there is so much information to learn. You may stumble on something that can help you and you can bring it to your doctor's attention. Good Luck!

4 comments:

  1. Lupus Hope... what a lovely lovely title, and I am smiling :)
    So happy to have found you through a comment you left on LupusGirl's site. I just wrote to her to say that I very recently came off Methotrexate, which I had been on for ten years and had entirely killed my appetite. Now that I am eating again, I want to eat all The Wrong Things! Just eating feels sublime. SO it feels fortuitous to have found you so I can learn from you. How do you have the energy to make all the right food? Making juices is exhausting!!
    On your list, number 12 is difficult isn't it!
    But it is a brilliant list - so thankyou for that too. Look forward to following you.

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  2. Have you thought of using SweetLeaf stevia in lieu of artificial sweeteners? I say SweetLeaf brand because it is the only stevia brand wherein only pure water is used during extraction. Other brands use chemicals during this process, which changes the taste of the leaf, hence the unpopular aftertaste. It also has many health benefits, and is the only brand to have 0 calories, 0 carbs, and a 0 glycemic index! I use it in smoothies, and it is soooo yummy!

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  3. Yoda,

    I have not yet made a decision on stevia whether it is absolutely safe or not...I prefer to drink smoothies/eat fruit in their natural state. I normally use raw honey or a small amount of agave as a sweetener(although I'm not really happy with the agave in the news lately either, they say it may be just another high fructose processed syrup :(

    Toni

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  4. Shaista,

    Making the juices and foods can be a lot of work...do you have anyone that can help you?One of my least favorite jobs is cleaning the juicer. The more you work at eating the proper foods/juices the better you will feel each day and the more energy you will have, look at it as "putting money in the bank" It sounds like your body has been through a lot so give it time...
    One thing I try to do to make my life easier is to prepare the veggies/fruits all at once for 1-3 days. I wash and chop/food process for the day/s and then I can just pour out ingredients when I need them.
    I usually do this in the morning when I have the most energy. Also this is my only REAL life's priority is to shop, cook, prepare healthy foods, other things fall to the wayside.
    Another thing to make life slightly easier is to use a vitamix or a blendtec blender or a mix master. All of these take the whole fruits and veggies and turn them into juice and are easier to clean.
    Nutrition for our sick and healing bodies is the only real priority! We need to take care of ourselves to heal!
    Thank you for your kind words, and feel free to come and listen and learn here, that's what I started this blog for, to help people!

    Toni

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